I wanted to update this post as many of you had been so helpful in sending prayers and positive thoughts. Koda has been fighting this disease for just over a year now. He is alive and currently stable! It has been one hell of a ride to get to this point.
I know many other owners are faced with this diagnosis and the prognosis is terrifying. We have been very fortunate to have an incredible medical team behind us every step of the way - and a dog that is stubborn beyond words!
A year ago, I started a blog to chronicle our journey. I'm hoping it will help other owners in this position and give others hope that Evan's Syndrome can be managed.http://www.sarabusby.wordpress.com
Again, thank you to everyone for your support and kind words! I know Koda feels them everyday!